A blog for people with disabilities and the people who care for them!
Hi, I’m John, I am a person born with Spina Bifida, I started this blog because I want to share my ideas and tell stories about how to improve people’s lives and give insights about topics surrounding disabilities and the people who take care of them.
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- Just because you’re broke doesn’t mean you can’t spend money
You can afford nice things on social security - Some hospitals are laying off workers while some are getting hit in their computer systems
some hospitals around the country say they’re not making money - When you have to see your doctor no matter how hard it is or how you feel about it
my primary doctor Won’t let me get my Botox injections until I see him - Last Friday’s explosion of George Santos proves that nothing will ever get done in Washington
What does this have to do with people with disabilities? Well, everything. - Disabled women are finding out Victoria’s Secret
Disabled women are finding out Victoria’s Secret used to be known for featuring only tall, skinny, long-haired women without any imperfections such as bumps or love handles. - Why Shopping on Amazon can be a game changer for People with disabilities
amazon shopping for people with disabilites are a great avanue for people with disabilites - In 2021, hospitals that had 25 beds or fewer made $32.8 million, healthcare for money, not the patient
Despite what is to be believed about hospitals, they profit. It’s not just CEOs of hospitals that make money. Surgeons and Physicians also make a pretty good amount of money.… Read more: In 2021, hospitals that had 25 beds or fewer made $32.8 million, healthcare for money, not the patient - My mother is in a nursing home
After 3 months in hospital (barring six days at home) my mother has been moved to a nursing home. It’s an absolutely beautiful home set in acres of countryside so… Read more: My mother is in a nursing home - It’s time for wheelchair basketball players to get there due
For years, women have been complaining about not being equal in sports. Take, for example, women’s basketball before the WNBA was formed; players were forced to play overseas. Things have… Read more: It’s time for wheelchair basketball players to get there due - Anxiety is a disability, how it’s an unfortunate family thing for my family
Anxiety is a serious thing; I don’t think people understand how serious it is. The bad thing about it is that anybody can get bad. Anybody can be affected by… Read more: Anxiety is a disability, how it’s an unfortunate family thing for my family - What is a joystick module, and why do people need it?
Not many people in electric wheelchairs think of their joystick and what they can do. Not many people know this, but a joystick is not just called a joystick; its… Read more: What is a joystick module, and why do people need it? - What I’ve learned living with Spina Bifida
I’ve had to live a long time with Spina Bifida; it’s been quite the journey. I’ve had to deal with a lot of surgeries, hospital stays, pain trying to figure… Read more: What I’ve learned living with Spina Bifida - Purpose of John Sikon WritesThe purpose of John Sikon’s writings is to highlight people with disabilities. People should know that they don’t need to be afraid of people with disabilities regardless of their disability.… Read more: Purpose of John Sikon Writes
- A guide for Future parents of a disabled child
I don’t know everything; I don’t have kids, I do not have a wife or a girlfriend. However, I am a man with a disability who is a single mom… Read more: A guide for Future parents of a disabled child - What lesson I’ve learn from Zion Clark
Man, disabilities are weird. For some disabilities, you’re born without an arm or a leg or sometimes with no legs, like Zion Clark, Zion Clark was born with a rare… Read more: What lesson I’ve learn from Zion Clark - People with Down syndrome are misunderstood in a world that should care
Growing up, I was always around people with different types of disabilities. That made life difficult because I have always had a physical disability, but I was high-functioning. Just because… Read more: People with Down syndrome are misunderstood in a world that should care - Hey, disabled men, just because she’s disabled too doesn’t mean she has to like you
Dating can be a pain in the ass; finding somebody that you connect with is very hard. To some, it comes easy; to others, well, some people search for what… Read more: Hey, disabled men, just because she’s disabled too doesn’t mean she has to like you - Life is hard for people with disabilities, so the disabled community put on your big boy pants and just deal with it
I used to know a kid named Sam Zink. Sam was a kid I did track and field with, did karate with, and I even went to school with as… Read more: Life is hard for people with disabilities, so the disabled community put on your big boy pants and just deal with it - I spend way too much of my Social Security check: how to do the same opposite of what I do
When I first turned 18 I became eligible for social security, my mother who’s a social worker helped me apply. The first few years of having those checks were golden.… Read more: I spend way too much of my Social Security check: how to do the same opposite of what I do - Why America’s Got Talent Has a Positive Impact on the disabled community like No Other
America’s Got Talent has had a positive influence on people’s lives. People from all over the world, very talented people from all over the world have come to the show… Read more: Why America’s Got Talent Has a Positive Impact on the disabled community like No Other - What words to use when talking to someone with a disability
There’s somewhat of a debate about how words should be used when referring to people who have disabilities. The word handy caped is an appropriate word to use when talking… Read more: What words to use when talking to someone with a disability - How do you make love work when your significant other is your caregiver
Love is hard, love is complicated. At least that’s what I’ve heard. I’ve also heard it takes a lot of work. What do you do when the person you love,… Read more: How do you make love work when your significant other is your caregiver - What every adaptive athlete should do while developing
When I was younger, as a kid with a disability I played adaptive sports. I first played baseball as a young kid. Well, after that, I did track and field,… Read more: What every adaptive athlete should do while developing - Why people with disabilities should use a physical therapist as a trainer
Some people do think working out is a must-have, a lot of people sometimes can go a little crazy if they don’t work out. The one thing I’ve noticed about… Read more: Why people with disabilities should use a physical therapist as a trainer - Why being a social worker is one of the worst jobs in the world, why they are important to people with disabilities
Almost my whole life I’ve known that being a social worker can be very difficult because my mom is one herself. I hear it all the time from my mother… Read more: Why being a social worker is one of the worst jobs in the world, why they are important to people with disabilities - Stupid people stay away from people with disabilities, please
Sometimes I wonder why people ask questions, particularly stupid questions. It’s mind-boggling how ignorant and stupid people can get especially when they’re curious, because man people can say the stupidest… Read more: Stupid people stay away from people with disabilities, please - Working at high school sporting events is great for people with disabilities, hers why
You’ve seen it on ESPN time and time again, People with disabilities working with non-disabled people who do sports is one of the best things a parent of a child… Read more: Working at high school sporting events is great for people with disabilities, hers why - Paraplegics should accept the truth, there will never be a cure
I’ve been a wheelchair user my entire life so I’ve gotten comfortable with using a wheelchair. Let me be clear I don’t love being in a wheelchair, but I’ve accepted… Read more: Paraplegics should accept the truth, there will never be a cure - Is Porn good for men who have disabilities, does it have a purpose?
is it healthy for men with disabilites to look at porn? - A few ways to determine if you got the right specialist
being comfortable with your specialist is key to having a great recovery - Mainstream TV media could care less about people with disabilities, why is that?
why doesn’t the media care about people with disabilities - Adaptive Sports aren’t always good for people with disabilities here’s why
playing adaptive Sports is good for people with disabilities but in some circumstances it’s just not worth it - When do you know somebody is attracted to you?
as a person with a disability flirting has a tendency to be a little difficult - Important tips to know for rehabilitation
Rehabbing can hospitals, aggravating, and lonely, however, doing simple things and knowing certain things will help anybody have a successful Rehabilitation completion. Here are a few simple steps to help… Read more: Important tips to know for rehabilitation - Is Delta on the cusp of making history for paralyzed Flyers
When it be nice for wheelchair, users keep their wheelchairs on the plane Wow, the plane is moving - Tips for getting from A to B while using transportation
knowing your destination while using your powerchair along with public transportation is a must - In a perfect world, hospitals should replace nursing homes, here’s why
nursing home model needs good looking over - Should people with disabilities vote? Does it matter?
don’t mean to be cynical but does the disabled vote really count - I may have spina bifida, in a wheelchair, but I don’t care about losing weight
I can’t lie I don’t care too much about weight loss - My experience with transurethral Incision of the prostate, why you should know about my experience with the surgery
here’s my experience with Transurethral incision of prostate (TUIP for short) - How I’ve dealt with my amputations, how I’ve moved on
getting a limb amputated is hard here’s how I cope with it - When Being an asshole as an advocate is a must
as a person with a disability speaking up for yourself means you have to piss people off - Do I deserve a supermodel girlfriend, as a person with a disability?
girls have never been my strong suit will I ever get a girlfriend a casual girlfriend? or someone to date? - Why do kids with spina bifida need to learn wheelchair basketball early in life? Well hers is why you should start your kids early
people with spina bifida need to learn adaptive Sports like wheelchair basketball early in life - Hey, stop asking me if I’m okay, I’m in a wheelchair so what
when talking to somebody with a disability ask yourself how would you like to be talked to - If you’re not driving your electric wheelchair like a Cadilac your wasting your wheelchair
For 35 years I used a manual wheelchair and then when I turned 39 the manual chair that I was using was kinda falling apart and I was up for… Read more: If you’re not driving your electric wheelchair like a Cadilac your wasting your wheelchair - Unshoveled snow is ablism, here’s why
it’s unfair for people who use wheelchairs to not have the sidewalk cleared - Hobby lobby fires women for having a service dog, ends up paying the price for firing women
a woman in Oklahoma City gets fired at Hobby Lobby for having a service dog - Could AI be the future for hospitals, nursing Homes
are AI in the future for hospitals - Jobs that people with disabilities could do
finding a job while you have a disability can be a pain here are a few jobs to consider - Why Living in a senior citizen’s apartment saved my life
In 2006 I was 24. I was in my last year of living in my mom’s house. I remember, just like it was yesterday, my mom’s house was going into foreclosure, and I wasn’t living at home then, leaving my sister and me to live with each other. - What if NBA players wore wheelchair basketball gear
If NBA players promoted wheelchair basketball on social media with the game progress faster? - My eating habits as a person with spina bifida
Let’s talk about food and Spina Bifida. When you have Spina Bifida, you have neurogenic bowels and bladder. Having neurogenic bowels is a lot to deal with; it means you have no control, which leads to accidents. - Is working out necessary for my physical health, or does it help my mental health?
Do you ever go to a gym and see a guy with huge muscles or in his element, in his world, while working out, just minding his own business? - A wheelchair basketball team, Syracuse Flyers, had $15000 worth of wheelchair basketball chairs stolen back in February; media is just now talking about it in April
a wheelchair basketball team got their chairs stolen and destroyed - Why is flying the least accessible form of transportation? Why is nothing being done to fix it
why aren’t airlines embarrassed about the lack of accessibility for people with disabilities? - How botox changed my life, why it’s the best treatment for incontinence
bladder incontinence is embarrassing and tricky to fix but with botox it helps the treatment is next to non - In tough times in Ukraine, where war ravishes the country, let’s not forget about disabled people affected by war
the war in Ukraine people with disabilities are suffering just like everybody else in the country - Activities,hotel chains face off in the supreme court over accessibility; who’s right?
activists are taking hotels to the Supreme Court over disability access - What if people with disabilities could use their Medicaid for housing?
California want to help people that are on Medicaid to help with housing - Is religion, Christianity, worth having for people with disabilities?
Is church the best fit for people with disabilites? - People with disabilities rally at the Capitol in Wisconsin to have better legislation for caregivers
on Thursday in Wisconsin people with disabilities gathered at the capital to try to come together and solve the caregiver crisis which is also a national crisis - My heavyweight fight for a better education
to some kids school comes easy rather be high school Elementary or middle school every part of school was tough for me here’s my story as a person with a disability - If a person doesn’t want to work, Society should let them be; here’s why
don’t ever feel sorry for somebody who has a disability - Deaf student in Michigan gets okay from the Supreme Court to sue Michigan school system over failure to assist in school
a deaf student in Michigan won a cas in the Supreme unanimously giving him the right to sue because of for loss of income and emotional destress, full story here - The highest-rated electric wheelchair on Amazon is $2,499
this Ranger porto mobility scooter is $ 2,499.00 on Amazon. would you buy it? - Leaders in Washington are introducing a bill to help people with disabilities have improved services
law makers in washington could make a law that could be history making for people with disabilites - St. Louis region’s public transportation to make cuts of there call a ride service
According to the report, Disability rights advocate groups are calling it cruel because it puts people with disabilities at a disadvantage. - In a report by Disability Scoop, QVC to start selling disability products
shopping network QVC making history for the disabled comunity - Smart devices are essential for people with disabilities who want to live on their own
Apple Google and Amazon have help people with disablilies aid their lives in a positive way by makiking smart devices - When people with disabilities stop being polite and start getting real
people with disabilities need to stop being polite and show some nastiness in order to get what they want - Should we teach every kid about people with special needs in school? Would it help
should we teach non-disabled kids about people with disabilities in school? - Should we be afraid of Republicans, is social security safe
do people with disabilities need to be worried about the people in Washington? - Comedian Josh Blue tells the truth through his jokes; the disability community needs to know we all need to laugh
Josh Blue is a comedian that we all need to admire - As a person with a learning disability and a physical disability, I wish I read more; here’s why
as a person with spina bifida I wish I had take the initiative in junior high and High School to learn how to read better - Utah Disability activist Steve Mikita dead at age 67
Steve Mikita a Utah Disability activist attorney is dead at age 67 - What society can learn from Judy Heumann
Judy Heumann died leaving a legacy we can all learn from #disabilityrights - Emt’s is one of the worst jobs to go into; here’s why
EMTs deserve better working conditions and way better pay - Medical transportation for paralyzed users is a severe issue; insurance companies are to blame for the mess that is transportation for the paralyzed
When I was a kid, like any other kid, my mom drove me everywhere, from doctor appointments to practices for track and field, wheelchair basketball, and parties to family events.… Read more: Medical transportation for paralyzed users is a severe issue; insurance companies are to blame for the mess that is transportation for the paralyzed - How to manage to rehab successfully in a nursing home
staying on top of a nursing home staff can be crucial to rehabbing in a nursing home - How I think hospitals make their money
here’s how hospitals can be nothing more than a business - My name Is John Sikon; here’s how I got my name
my grandfather meant alot to me, he was like a father to me - People with disabilities need someone to lead them to a better future
If people with disabilities had a good leader the future would look good for them - Do you know more than your doctor?
Why you shouldn’t rely on a physician’s opinion - Love, relationships,sex
As a person with a disability, would you be intimate with another person with a disability or feel more comfortable with a non-disabled person - People with disabilities are taking over social media, Can it go too farTwitter, Facebook, and Instagram have changed people with disabilities’ lives, but can it go too far
- Why paraplegics should get electric wheelchairs
It’s healthier for people with paraplegia to use electric wheelchairs later in life; here’s why - Nurses are a valuable part of making people better; why are they disrespected
Nurses often overwork and are underpaid, especially at nursing homes
