My eating habits as a person with spina bifida

When I was a little boy, I remember going to McDonald’s quite frequently, and Burger King. As a kid, I lived most of my childhood with my grandparents. My grandma would cook, but there were a lot of times that we ate out. Eating out was one of my favorite times as a kid.

Let’s talk about food and Spina Bifida. When you have Spina Bifida, you have neurogenic bowels and bladder. Having neurogenic bowels is a lot to deal with; it means you have no control, which leads to accidents.

Having bowel accidents is a humiliating experience, something I’ve gone through so many times.

When you have a lack of bowel control, you get constipated a lot which leads to stomach aches, nausea, and accidents. As a teenager, that isn’t very comfortable; when you get to adulthood, that’s even worst.

It took me a long time to get control over my bowels. I didn’t get control until I was in my late 30s. There were stretches where I got it under control, and then there were stretches where I didn’t get it under control—a lot to deal with.

There are a few different ways of controlling the bowels; the most potent mode is surgery. The other way of handling bowel accidents is a bowel program, where you use a suppository every other day and use the bathroom.

There’s a way that I manage my bowls.

Because of my bowel issue, I must watch how much I eat.

After having so many accidents, I decided to change my food intake.

They say to have three meals a day, well I can’t eat that many times a day. Because of not have regular working bowels, I only have one big meal a day.

I do have to say I live on my own, and I don’t have any kids, so I do eat out a lot. Because I have a bridge card, I also use that to get food. Once in a while, I will eat twice in one day, but most of the time, I’ll only eat once.

It can get frustrating having to get it right to where you don’t have accidents. I would say this in closing don’t give up, and if you take the only eating once-a-day approach, remember if you get hungry later, you can always eat a snack later. Where there’s a well, there’s a way.


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